I'll be honest, I did not have a cute or relevate quip to title this month's post. I also don't have anything particularly profound to say. It's been... a week.
The weather here in Texas has gone a bit bonkers, which means I'm in existence mode because of elevated pain and exhaustion.
To be honest, if I hadn't already started working on the homepage before this storm system came through- it'd be suuuper late. I don't have a lot to share this month, except- 2 years ago May 1st we sat down and decided that PrettySick Supply was needed in the world, and we started the process of making it a reality.
And even with nothing else to report, and no brainpower to come with anything clever- That is 100% worth celebrating. And in July when the website itself has it's 2 year anniversary- we promise to be a lot more effusive and excited about it.
For now though, for those of you who have been with us since the day we launched the FB page in preparation: THANK YOU. We couldn't have created this resource or this community without you and we can't wait to keep it going for another 2 years- or as long as you'll have us.
Happy May ya'll. Be kind to yourselves.
MAY'S FEATURED SHOPS
CAMPAIGN(S) OF THE MONTH:
Normally, each month, we feature 1-3 fundraising campaigns. We like to share these links so that visitors who have the means know where need may be and can help folks in our community who are trying to get access to care or equipment they otherwise can't afford. Because there are so many folks needing help right now, we're going to start sharing a few campaigns a month- in hopes that we can help spread the love as widely as possible. If you are able, please consider donating to one of these fundraising campaign to help those who need it.
Help an enby living with severe anxiety and chronic pain:
I’m currently in the middle of medication changes/ trials/whatever you wanna call it to treat my anxiety. My anxiety is BAD, and it’s undermedicated at the moment. I wake up anxious about nothing, my heart racing at the very THOUGHT of leaving the house.
I work at a day program for adults with disabilities, which, while an amazing job, does not pay enough and triggers my anxiety on a regular basis. LITERALLY all that works while my meds are messed up like this is CBD vapes and god knows those are expensive.
Since my last meds have stopped working, I have been ill on and off from all of the side effects from my medications changing so much. I’ve had to miss work, which I cannot afford to do since all of my medications are expensive enough. I have also been battling pain from thoracic outlet syndrome for almost 7 years and am about to re-enter physical therapy again, during which I may have to miss even more work.
Help Me Diagnose & Treat My Progressive Illness
My name is Aster. I am a 22-year-old Accessible Education major, writer, and disability advocate. Currently, I work two jobs and try my best to live a healthy and active lifestyle. Unfortunately, though, my health is deteriorating rapidly.
Over the past year, my dizzy spells have become more and more frequent. More often than not, standing up makes me lightheaded, and I am very prone to blackouts and falls. In the last month, I’ve fallen twice at work and multiple times at home. When I went to my doctor about it, she diagnosed me with Orthostatic Hypotension, or low blood pressure upon standing, and attributed the disorder to my meds - despite the fact that I’ve had the dizziness since 4 years before I went on medication for my mental health. The strange thing is, though, that my symptoms are much more consistent with POTS (Postural Orthostatic Tachycardia Syndrome) than OH, as my blood pressure barely drops upon standing. Instead, I get episodes of tachycardia. This is consistent with an EDS diagnosis. I also have symptoms of neuropathy in multiple places on my body, which can also be comorbid with Ehlers-Danlos.
I found a neurologist specializing in EDS and POTS in my area, but he doesn’t take my insurance. In order to get a consultation with him, I need to pay 650 dollars. This is not including later treatment. It is incredibly important to me that I see this doctor, as he can give me the answers I am so desperate for and help me get proper treatment - including an evaluation on my heart, as EDS often has organ and tissue involvement. All proceeds for this GoFundMe go towards my first visit with this specialist, and any subsequent visits I may have. If you are able to donate, I would be eternally grateful!
If you can't contribute, please consider sharing any of our featured campaigns on your social media! Someone you know may be looking for a way to give back and could make a huge difference in someone's life! You can also look at previous blog entries to see if other featured campaigns are still in need of help!